“Take that spirit, Henry. Take him. Now! ”I heard my 6-year-old son screaming as I approached the house. It is not uncommon for him to hear her scream. But that and it is not uncommon to hear her screaming for help from her older brother.
I was caught by a small pizza coming down the stairs to find my family and find a game party. My three children, ages 10, 8, and 6 years old, were filled with chairs and on the floor by my husbands. Unhealthy food and drink were split when he played in 2006 Strict video games for Xbox.
“Look! Henry is using it switch to Xbox controller, ”My husband shouted at the top of his voice. I looked up, and saw Henry clutching at his beanbag. Each time his arm was pressed against a very red button, a proton pack attached to the back of the bomber fired a shot into the window.
A smile spread across my face as I watched my family play together. This should be a common occurrence, but it is not. Even though my children are around the same age, it is difficult to find experiences that they can share.
Henry is my middle child. She was born prematurely, younger, and needed medical attention. The next day after her birth, I learned that I had contracted the virus (Cytomegalovirus) I was pregnant, and it affected the size of her brain. What he predicted was that, perhaps, he would not be able to walk on his own or talk. Awareness was changing the way I viewed availability and inclusion.
For the first few years of Henry’s life, he could not control his muscles. Before she was a year old, she was diagnosed with spastic quadriplegic Brain disease. Henry worked in support for many hours and, over the years, has become stronger. He can now lift his body, move his arms and legs and stand up for a while and be helped. But even as he progressed, Henry got tired and moved his body.
Despite his weaknesses, Henry is a smart and sassy kid who loves to play and stay in the middle of fun. My husband and I try to change everything so that Henry can participate, but it is not difficult. Henry attends a different school than his siblings, and some out-of-school activities are not ready for him. Family outings, as a place of relaxation, present many challenges related to travel.
Many of Henry’s equipment, such as a wheelchair and his eye contact device, is expensive. We should order it through the armory at the hospital or Henry’s school. It may take four months or more for any equipment to be approved by the insurer and delivered for use (if insurance covers). We need the help of a professional to be able to repair weapons every time we receive an item, as well as as it grows and develops.
We don’t usually find flexible accessories that we can buy on the shelf and use right away, especially with events that the whole family loves. That’s where the Xbox backup manager comes in. It integrates with our Xbox as a standard driver. The main difference is that it has large buttons on top of it, which is great for someone who can’t walk properly.
Henry can use the big black buttons on the controller, or we can connect to the view button that should not be touched. Each button can be set to match any of the control buttons. We can also use external updates right away.
For example, when we play Strict, the right button (RT) on the common controller heats the proton packet. We lock Henry’s outer button on the harbor called “RT” on the back of the controller. Then, when it hits the outside button, it works again as if you were pressing the right switch. We can also create both buttons on the switch to perform the same function, so that if they interrupt their purpose and miss one button but hit the other, they still get what they want.
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