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‘This is not in your head’: FT readers share their difficulties with the long Covid

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Long Covid has been called a public health problem that has been hidden in the epidemic by medical experts. More than 100m patients worldwide are said to be suffering from debilitating symptoms 12 weeks or more after diagnosis.

Our commentator on the known Covid long published many comments from online readers and responded to our posts on social media.

Patients suffer from a variety of symptoms, most of which are fatigue and shortness of breath. Commentators shared their experiences of the long-running Covid; Their symptoms are based on the loss of odor and taste of malaria, resistance to the body and “brain fog”, for a period of about two years.

Although many of the causes are still unknown, women, overweight and obese people who think they can have long-term Covid.

Scientists are in the process of finding a solution, but there are more to come. Some readers also shared what helped them, as well as their hope that the crisis would lead to more research, as well as clinical success in other cultures.

Many readers comment on the article that appeared on our page and comment on our Twitter posts published below. We invite you to continue the discussion in the comments.

About two years of symptoms

I have been with Covid for a long time about two years now. I can still smell it and my taste is not working. It is not going well and I had to get used to it, the result is that I eat less because I am no longer satisfied with any food. This is bad and I can have it, the loss of smell is very bad, the connection of thoughts and memories is gone – it feels like part of me is dead. I am fit, under 40 years of age with no previous medical complications. Doctors have no answer. – Grumpz, via FT.com

It has affected my whole life

I became ill with Covid in July 2021. I was 34 years old, with no previous illnesses, non-smoking, nutritious food, plenty of exercise and not obesity. I had one problem at the time and now I have my second problem.

My long-term Covid symptoms are still very bad and I currently have a chest infection that has made the symptoms worse. I have personalized medical care, but they do not know how to treat me, even though I have been in and out of the hospital for five months for various tests.

I could not even climb the flight of stairs for three months. I had a fog in my brain. It was horrible. I would be in the middle of talking and completely forget what I was saying or what I had said in the past. Nighttime is still bad. Great heat, amazing dream.

Fatigue is the worst. I wake up very early in the morning and feel tired even though I have stopped drinking (which has really helped me). Some mornings I feel better, but others take just an hour to feel like I am close to someone. It has affected my whole life. I needed to cut back on exercise and socializing. I have no scars but my lungs are working at 45 percent with black spots all over. It has been very painful. – Mr PJT, via FT.com

Night and day

A vivid hyper realistic dream is something that surprised me. In addition, it can sometimes take up to four hours for a person to be physically fit and effective when they wake up, which is not something most people understand. – OhMyOhMayi, via FT.com

Fatigue and exercise

Fatigue comes and goes. But solid? I have gone from cycling 250 miles a week to about 20 miles a week. Hopefully it will return.

The loss of my sense of smell meant that I had not put up with the new dog called eau de chien but was about to kill the family with a chicken! – DrugHunter, via FT.com

Take a doctor

Morning sickness, insomnia, and nightmares. Fatigue is like a release. I was very healthy before taking Covid.

My symptoms peaked in four to six months and there has been a gradual change up to 12 months, unless I take care of myself, I can live a normal life. Still, I can’t exercise.

I am a doctor and I am amazed at the ignorance of my friends. This is not in your head. Just because a drug can’t explain it doesn’t mean it doesn’t exist. – NW3doc, via FT.com

One year on

My friend took Covid in December 2020 and became ill with Covid for a long time last year. Now he finally appears to be out of his arms after 12 months.

Getting specialized treatment last summer at a cost of £ 100 an hour from a respiratory specialist seems appropriate. They have provided an exercise program (and explained what was wrong).

Her two supervisors had no help at all. They, contrary to instructions from the HR dept, constantly harass him to return to office work, including a routine return to work. They did not ignore the two occupational health reports (perhaps because their findings were not what they wanted to hear or submit to their senior management). This stress has caused her to lose her temper and may even delay her recovery. – rikadus, via FT.com

Dietary changes

Yes, Covid is long and painful, but there may be an easy way out. I was sick for a few months after I got sick in March 2020. By testing myself, I regained my old health (even now more than ever).

I start the day with a Wim Hof ​​Method Breathing with cold water, a healthy diet for supplements (B-complex, C, D3 / K2, Zinc, Magnesium, Selenium) including Quercetin, Resveratrol and N-Acetyl Cysteine ​​(NAC) .

My diet now consists of a balanced diet, eating lots of fruits and vegetables, meat / protein and unhealthy fats. Yes, this is not medical advice, but you can try it at home. – Castor and Pollux, via FT.com

Staff results

Long Covid will bring economic hardship because millions are left infertile because of the long Covid. Employers, business groups and governments need to be prepared for the decline in production here. – A stranger, via FT.com

Possibility of extensive research

I just believe that this encourages new research on post-viral chronic fatigue syndrome and brings positive results. CFS has been around for years and is probably home to millions of patients worldwide. – Eumistbejoking, via FT.com

Variation of symptoms

I almost died of Covid with pneumonia in March 2021, I still had tuberculosis, shortness of breath and shortness of breath and paralysis. . . I think this is a long Covid. I do not know how and when I will feel better. – @ Suemc64S on Twitter

Progress for one patient

I have a long Covid. My doctor / Covid hospital has been looking to improve symptoms and has diagnosed me with CFS / ME. I take a small dose of ADHD medication in the morning with a small dose of sleep / pain at night. It has been slow but it seems to be true that I will start working again in 2022 – @nvcanucklehead on Twitter

Early retirement

It’s been 12 months since I took Covid. I am short of breath, tired and have a fog in my brain. I want to know the answer. I had to retire when I planned to work long hours, I was always very self-sufficient. – @christenebooboo on Twitter

18 months later

I am about 18 months. Fever several times a day. Fatigue, damage to the lung tissue, are all real. – @ToxiclownRob on Twitter

Silver lining

With so many scientists around the world working on this, I wonder if we will find a solution / cure for some autoimmune diseases, as evidence suggests that long-term Covid is an autoimmune disease. It could change the lives of millions; actually silver lining. – @TheBlondePI on Twitter

* Comments have been modified to make it longer, shorter and clearer

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